Is it Narcoleptics or People with Narcolepsy?

Watch this video on YouTube.

So excited to release this video – I’ve been meaning to talk about narcolepsy language for a while. This is an important video for media representatives, researchers, clinicians, drug developers, people with narcolepsy, and their loved ones looking to raise awareness.

Additional Resources:

Sleep Disorders Recommendations:
Rebecca E. Fuoco; People-Centered Language Recommendations for Sleep Research Communication, Sleep, Volume 40, Issue 4, 1 April 2017, zsx039,

Daniel J. Buysse, Sairam Parthasarathy, Julie Flygare; Introducing People-Centered Language to SLEEPSleep, Volume 40, Issue 4, 1 April 2017, zsx038,

Epilepsy Research:
Fernandes, P.T., De Barros, N.F., and Li, L.M. Stop saying epileptic. Epilepsia. 2009501280–1283 DOI:
Friedrich, Latica et al.; How does the label “epileptic” influence attitudes toward epilepsy?
Seizure – European Journal of Epilepsy , December 2015 Volume 33 , 54 – 59

Psychosocial Impact of Stigma in Narcolepsy:
Julie Flygare, Medicine X Ignite Talk 2015:

I hope this is the beginning of a great discussion! I look forward to hearing your thoughts in the comments below. Thank you!

from Julie Flygare

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