Is it Narcoleptics or People with Narcolepsy?

Watch this video on YouTube.

So excited to release this video – I’ve been meaning to talk about narcolepsy language for a while. This is an important video for media representatives, researchers, clinicians, drug developers, people with narcolepsy, and their loved ones looking to raise awareness.

Additional Resources:

Sleep Disorders Recommendations:
Rebecca E. Fuoco; People-Centered Language Recommendations for Sleep Research Communication, Sleep, Volume 40, Issue 4, 1 April 2017, zsx039, https://doi.org/10.1093/sleep/zsx039

Daniel J. Buysse, Sairam Parthasarathy, Julie Flygare; Introducing People-Centered Language to SLEEPSleep, Volume 40, Issue 4, 1 April 2017, zsx038, https://doi.org/10.1093/sleep/zsx038

Epilepsy Research:
Fernandes, P.T., De Barros, N.F., and Li, L.M. Stop saying epileptic. Epilepsia. 2009501280–1283 DOI: https://doi.org/10.1111/j.1528-1167.2008.01899.x
Friedrich, Latica et al.; How does the label “epileptic” influence attitudes toward epilepsy?
Seizure – European Journal of Epilepsy , December 2015 Volume 33 , 54 – 59 https://doi.org/10.1016/j.seizure.2015.10.012

Psychosocial Impact of Stigma in Narcolepsy:
Julie Flygare, Medicine X Ignite Talk 2015: https://youtu.be/MXTd8xd_f8s

I hope this is the beginning of a great discussion! I look forward to hearing your thoughts in the comments below. Thank you!

from Julie Flygare http://julieflygare.com/is-it-narcoleptics-or-people-with-narcolepsy/

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