I was scared.
I didn’t know if you’d come with me on this path.
We’d JUST finished the incredible record-breaking Sleep In 2019 campaign, with many of you giving time and spoons to support Project Sleep.
The very next day, I learned that our advocacy moment had arrived — yay!! But with a really quick turnaround deadline — gulp!!
It was our time to shine – our time to show Congress, NIH, & CDC that people with sleep disorders were organized and taking action. I never doubted our community’s fierce passion for the cause, but I worried about the timing, on the heels of the Sleep In and with short turnaround. People are busy and spoons are limited.
Yet, I suppose some opportunities, like adversity, come on their own time, with little regard for our neat little schedules and plans. So we try our best to go with the flow (still hard for me, but working on it).
Here We Go…
As I raced to send out the advocacy action alert on Wednesday 3/13, we effectively had 9 business days to try to get 20 Representatives signed onto an important Congressional Letter. To achieve this, we had to:
- reach advocates across the country,
- help them reach their Representatives’ offices,
- conduct lots of follow up.
So yeah, I was worried. I created a cheesy poster-board to broadcast our progress via Facebook Live and Instagram.
And you showed up.
Even though the process was a bit complicated and some of our important emails went to your SPAM folders (true story). For a while, there was just one Representative listed on the poster (my own), then two…
You kept showing up, you emailed, you called, you shared your stories, and you enlisted friends and family to do the same. Collectively, the project included thousands of emails with nearly 200 patient advocates reaching over 100 congressional offices on Capitol Hill, reaching districts from New Hampshire to California, from Michigan to Alabama!
The day before our deadline, on Monday 3/25, I was doing work at a Starbucks when I learned that we’d …