Friends: I’m SO beyond thrilled to share the news with you today that Project Sleep proudly partnered with IFC Films and Ode to Joy Director, Jason Winer, to create a PSA to raise awareness about narcolepsy with cataplexy.
Please watch and share with friends!
Teamwork makes the dream work
I am so grateful to Jason and IFC for their enthusiasm and partnership. Creating this video was a team effort, with significant contributions by many thoughtful people. Most notably, a huge shout out to Hannah Powell for making this project a reality and working with myself and Project Sleep every step of the way!
How this came to be
Over the past year, I researched how other disease communities have worked with and responded to the film industry in similar situations. I interviewed health communications experts and people in “the industry.” I learned A LOT. (Honestly, it would be another post entirely to explain how eye-opening this process was, but I’ll link to my fav articles at the bottom of this post.)
Since Ode to Joy was in post-production as of 2018, influencing the content of the actual film itself was unlikely. Experts advised me to focus “my asks” on the marketing and distribution phase.
One of my key “asks” was to collaborate on a short PSA to raise awareness about narcolepsy with cataplexy surrounding the film’s release. Examples I’d seen included Netflix’s To The Bone Nine Truths PSA and The Emoji Movie‘s Stand Up to Bullying campaign.
Once in communication with Ode to Joy’s team, I presented “my asks” and director, Jason Winer, loved the PSA idea and quickly committed to working together to make this happen. This was a surreal moment! I’d spent months researching and formulating my asks, and now it was now “go time!”
If you ask for what you want, you better be ready in case you get it!
I had ideas for the PSA and was happy to draft the script, but it was certainly a major undertaking!Jason and I decided to keep this to under …